Can’t understand why some are upset over any potential autism registry? Culling data from medical records, pharmacies, genetic tests, even smartwatches reminds many of similar lists Nazis used to kill hundreds if not thousands of autistic and intellectually disabled kids. (It is estimated that close to 250,000 disabled people were murdered under the Nazi regime.) Whether one thinks it fair or not, likely to happen in the US or not, people are concerned, if not afraid.
It’s all being done because Secretary Kennedy is convinced autism is an epidemic. The term “epidemic” is typically used to describe a rapid increase in the incidence of a disease, and most reasearchers and medical professionals understand autism as a neurodevelopmental brain condition. It ignores that better tools and awareness has increased detection.
Many on the spectrum work, marry, and live full lives despite Kennedy’s suggesting otherwise this past week. His comments were not generous nor true. (I wonder what Kennedy’s friend, Elon Musk, thinks. He’s on the spectrum too.) And ultimately as a Christian, does one’s ability to produce make one more valuable in the Kingdom of God? The answer is no. Every life has value to God. They should to us as well.
This is ultimately the government accessing private medical histories for its own use – theoretically for research, but without any historically required consent. It’s instigated by a person with no true medcal knowledge, just theories too often echoing the evils of eugenics. He’s suggesting an answer to the causes of autism will be found by September because he has a preferred cause in sight based on his assumptions and half baked ideas, not scientific research. Nothing says that this proposed list won’t result in black lists of some kind, restrictions on rights or care, insurance loss, or who knows what.
We are a fallen humanity and capable of great evil, even when we think we are doing good. Now all of a sudden, it seems we are to trust the government (or anyone) implicitly? That’s ignoring biblical and real world realities. In fact, the US government doesn’t have such a great track record. (Nor does humanity in general.) Consider as just one example the moral depravity of the Tuskegee Experiment. And so, we must not be too quick to look away from your neighbors’ loss of privacy if not eventually many other rights. It can become a downward spiral. It could be any of us next.
Love of neighbor, in this case protecting and caring for those with special needs, is a call of all Christians and a civilized society. Meanwhile as debate rages over any registry, services to our autistic neighbors or loved ones (and others) are being cut. These cuts can lead to reduced access to therapy, longer wait times, increased financial burdens, and limitations in school-based services, potentially affecting low-income and rural families the most.
I understand cuts or changes in policies, but the ways this is being done is not loving our neighbors well. It has been utilitarian. This leads me to share why I am posting about this when just a pastor, not a medical professional. It’s because I love people on the spectrum and with intellectual disabilities – in and outside of my family over many years. I invite you to get to know such people better and love them too; supporting their families as you can and they allow. It can be hard in some cases, but no human is ever a curse. You will likely learn more about love, joy and Jesus on your way.
© 2025 The Rev. Louis Florio. All content not held under another’s copyright may not be used without permission of the author.
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